Navigating the Healthcare System with Long Covid

Discover my journey navigating the healthcare system with long Covid, emphasizing self-advocacy, persistence, and the power of hope.


7/21/20232 min read

a woman laying in bed with fireworks in the background
a woman laying in bed with fireworks in the background

Navigating the Healthcare System with Long Covid

The journey through the healthcare system with long Covid can be a daunting one. The novelty of the condition, coupled with its wide-ranging symptoms, often makes it difficult to find practitioners who are knowledgeable and treatments that are effective. This was a reality I faced during my own struggle with long Covid.

After my initial bout with COVID-19, I was left grappling with persistent symptoms - congestion, fatigue, and gastrointestinal issues that lingered for months. When I reached out to my primary care doctor, I was met with confusion and a lack of solutions. The suggestion to take over-the-counter antihistamines felt like a band-aid on a wound that required stitches.

In my quest for answers, I sought the help of a highly-rated infectious disease specialist. To my dismay, this specialist dismissed my concerns, stating that "Long Covid is overhyped in the media. Your symptoms must be from something else." I was sent away, my questions unanswered, my symptoms unaddressed.

Despite the discouragement, I was determined to find help. I delved into research, seeking out information and resources that could guide me to the right specialists. I found that many others were experiencing the same dismissive attitudes from healthcare professionals, their symptoms chalked up to anxiety or depression.

The complexity of long Covid, with symptoms spanning multiple specialties - respiratory, neurology, cardiology, gastroenterology - added to the challenge. Each doctor I visited seemed to focus only on their area of expertise, without considering the bigger picture. Misdiagnoses and dismissive attitudes stalled my progress and left me feeling weary.

The journey was long and arduous, but my persistence eventually led me to a solution. It wasn't found in a clinic or a doctor's office, but in my own research and determination to reclaim my health.

The key takeaway from my journey is the importance of self-advocacy. It's crucial to persist, even in the face of skepticism or dismissal. Seek out information, connect with others who are going through similar experiences, and don't stop until you find the answers you need. There is hope, and sometimes, it comes from the most unexpected places.